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About Me

Rick Sommers-Steinhaus, 2017

My background

Everyone gets dealt some tough cards in life. Some of mine just happen to be MS.

The story behind the story

I have a background in NY Media  and a master degree in Social Work from NYU.   I have recently left the workforce to apply what time and energy I have to putting a human face on a disease mired in fear and statistics.  I hope you'll come along for the ride!


www.Rickaroundtheglobe4MS.com  


  • fun and  mindless  facts...

the internet might tell you some odd and interesting things about me.  Some of the highlights?

-  I have a bachelors degree in Television/Radio from Ithaca College

-I was diagnosed with MS 6 months after I ran the '93 NYC Marathon

- I used to park jets for the Delta Shuttle at LGA in NYC

- I graduated from Dobbs Ferry (NY) high school in 1978

- I  worked as a radio personality on Long Island (WBLI) and New  York (106.7 Lite FM)  for 22 years before I went to grad school for Social Work at NYU

- I have actually been to Kamloops British Columbia!

- did standup comedy in  NYC in the 90's

- I have done and do motivational speaking for the MS community and various pharma companies since 1994.

- I have actually held the Stanley Cup

- I love to fly and have flown  in a glider, a hot air balloon, the Concorde at 55,000 feet, and para-sailed, 

- My middle name really IS ZEKE!

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The story behind the story

Everyone gets dealt some tough cards in life. Some of mine just happen to be MS.

The story behind the story

The initial itinerary had something like 15 stops,  startling in NYC and following the sun around the planet (IE: JFK-LAX-JAPAN-Manila-Melborne-Mumbai-Athens-Sweden-Madrid-Johannesburg-Sao  Paulo-Mexico City-NYC)....as a rough idea. 


If you've ever seen a frayed electrical cord,  you can imagine the damage inflicted upon the neuron-transmission system of someone with multiple sclerosis.  When the connections are broken, the signals get disrupted and in some cases do not make it thru.


My brain might tell me to raise my hand to catch the car keys or the apple  my wife tosses my way, but the signal gets knocked off the rails in my neurological system.  Make sense?

It didn't until I was diagnosed 25+ years ago.


So, in a grand effort to publicize "what MS looks like" on a global scale, I am looking to fly around the world, making stops long enough to make my next connection*  to draw attention and support to the many millions globally who deal with MS as patients, caregivers, family, educators, friends, co-workers, and neighbors.  Connections are  key, because when they don't work, you have to find another way and reassess your plan.  That's why I say my MS is NOT life threatening, but life  Altering!


The initial itinerary had something like 15 stops,  startling in NYC and following the sun around the planet (IE: JFK-LAX-JAPAN-Manila-Melborne-Mumbai-Athens-Sweden-Madrid-Johannesburg-Sao  Paulo-Mexico City-NYC)....as a rough idea. 


* this looks insane on paper, but I cannot think of a better way to make a point.  Will I die from jet lag?  heck, that's how I describe MS fatigue.  It's chronic, it's debilitating but it is what it is.


So help me to make this come true.  www.Rickaroundtheglobe4MS.com 


GoFundMe asks a minimum of $5 US.  If you can take part, I'll be taking a piece of you along with me on my global journey.  As I do not yet have 501 c 3 status, it is not  tax deductible.  But as a colleague, Kristi Salerno-Kent once showed me, strap on a pair of swim fins and try walking out of water.  It is one of the greatest lessons I have ever learned about MS

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Everyone gets dealt some tough cards in life. Some of mine just happen to be MS.

Everyone gets dealt some tough cards in life. Some of mine just happen to be MS.

Everyone gets dealt some tough cards in life. Some of mine just happen to be MS.

HOW YOU CAN HELP

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I can not make this Rickaroundtheglobe4MS trek without your support. I am appealing to friends, colleagues, people with MS or other disabilities, passionate and compassionate people to donate any amount at all to reach my goal of $25K. Please go to FIND OUT MORE to access my Go Fund Me page.

Thank you!!'


Contact Me

Please email me or send a message here

Rickaroundtheglobe4MS@gmail.com

(646) 765-6819

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